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Hello everyone! I'm not really sure
what I'm wanting here, in fact,
I'm almost afraid of the answers I might receive, but here goes. I
got my implant on Oct.30th 2006 and was activated Nov.20th, 2006.
Between Nov.20th and Dec. 12th, I have gradually increased up to
1.0. I have been 1.0 since Dec.12th, 2006. My question is: Can it
still be too early to NOT feel that there is a difference in my
mood? I really haven't noticed feeling any better. I don't think I
feel worse, but I am starting to worry that maybe by now I should be
feeling the "slightest" bit better. Sometimes it's hard to tell. I
had an appointment yesterday and my doctor decided to leave it at
1.0 for 2 more months since I am starting to notice a considerably
mild, but nonetheless definitely noticeable, "pinching, or lump
feeling" in my throat while the VNS is firing. This does not last
the whole 30 seconds, but rather about 10 to 15 seconds of the peak
of the 30 seconds, if that makes sense.I was just wondering what
everyone else started feeling first and when and at what setting? I
know everyone is different, so I don't know why I'm even inquiring
about this. DUH!! I hated all the negative stuff that one guy posted
on here about Cyberonics and VNS and people being in this for "the
money" and making up stories of success with the device. I really in
all honestly, DON'T believe anyone would be that cruel and
heartless, or at least I hope not. I try to read HERB'S articles
that he links us to about the postives of VNS, but some of them are
pretty long and complicated for my simple mind. I know at one time
NANCY had stated that sometimes when the participants in this group
get to feeling better, they seem to quit posting. I wish they
wouldn't do that! I need to hear some positive stories. I am willing
to wait a year or longer as I'm NOT impatient. I just need some
HOPE! But no FALSE hope, please. I can handle the REAL TRUTH better
than FALSE HOPE. If it's true that it's probably NOT going to work
for me, then I will just have to research and find something else to
look forward to helping me, like I have done for the past 23 years.
Thanks for all of your support. I think of everyone of you everyday,
and hope for the best for all of us!!!! Love, Suzie
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